Originally published January 27, 2019 in the Cedar Rapids Gazette & the Waverly Newspapers
In her Condition of the State message, Gov. Kim Reynolds noted that Iowa has invested significant resources since a 2013 redesign of mental health services and will continue to do more this year with the creation of a mental health system for children.
“Creating a mental health system is complex and it won’t be solved overnight. But no parent, child, friend or neighbor should suffer in silence when it comes to mental health,” she said.
I am hopeful about Governor Reynolds’ commitment to improving mental health services, and I am encouraged by her emphasis on early detection for our children. Yet, I am also cautious because, in the words that greet visitors at a New Monastic Christian Community: “Everyone wants a revolution, but no one wants to do the dishes.”
Movements begin ̶ and often end ̶ with talk of reform and revolution. But genuine improvement begins during discussions while doing the dishes.
I want to do the dishes because I am a parent, brother and son who also happens to be a university president in this state. I have been immersed in mental health concerns for most of my adult life walking with friends, family members and students who are learning to manage their brain health conditions.
Some years ago, I led a campus movement to recast the term “mental health” to the less stigmatized “brain health.” This revised nomenclature softens the imbedded societal shame associated with conditions of our brain. Most likely, someone you love is coping with dementia, ADD/ADHD, schizophrenia, bipolar disorder, PTSD, OCD, depression, anxiety, alcoholism, narcolepsy, Parkinson’s, opioid addiction, dyslexia, dysgraphia, dyscalculia, or Alzheimer’s. All conditions of our human brain. You are not alone.
While I welcome a brain health revolution in this country, I am, first, interested in offering thoughtful suggestions for our governor and the public servants of our state. They can:
1. Begin with early identification: Every school needs embedded educational psychologists who understand the difference between ADD and ADHD, for example. Children with ADD look to be awake, but their brains are sleeping. Children with dyscalculia are often perceived as intellectually inferior. Without an informed intervention, in later adolescence, these treatable maladies can metastasize into more aggressive conditions like depression and anxiety. The governor has proposed $3 million to help teachers identify mental illness in the classroom. Assuming $60,000 in salary and benefits, this appropriation could fund 50 specialists in a state with 367 public school districts. Let’s begin a pilot program in 10 districts, using a total of five specialists each, documenting what we learn over a period of three years. The smarter we are, the more effective we’ll become in serving our children and wisely spending taxpayer resources.
2. Identify treatment resources: Treatment for some brain conditions is already in place. For example, specialists trained in the Herman Method can re-teach children with dyslexia how to read. Children with depression require psychiatric interventions. Given that two-thirds of Iowa’s counties do not have access to a psychiatrist, each high school should be equipped with a tele-psychiatry portal. This portal, paired with physician assistants with specialties in psychiatry, creates a cost-effective multiplier effect. We can multiply the resources to serve children.
3. Equip independent colleges, universities and community colleges: About 60 to 70 percent of all Iowa high school students pursue some form of post-secondary education. These bridge years from adolescence to young adulthood are a precarious time. As is the case with grade transcripts, the legislature should loosen privacy laws, and enable students to provide us with documented brain health transcripts. Today, 50 percent of college students arrive to campus with a brain health condition, 25 percent of which are undiagnosed. Even more frightening, 7 percent of all college students actively consider death by suicide. To put that into perspective, approximately 1,000 students on our campus have a brain health condition, and 140 actively consider suicide. The sooner we are aware of brain health challenges, the quicker we can provide a support plan.
4. Work to end the stigma: I attended The Des Moines Register-sponsored mental health forum last fall, which featured Governor Reynolds and two challengers. The most powerful moment in that forum was when she shared her struggle with alcoholism. It takes uncommon courage for political leaders to lay themselves bare. Our governor’s willingness to share her brain health disease was, thus far, her most important act of public leadership. Her bully pulpit will now help thousands of Iowans.
I hope Governor Reynolds’ public declaration begins a revolution. But first, the rest of us need to begin helping with the dishes.
That’s a powerful post. Steady, consistent work can change a mindset. We’ve changed the way we think about smoking, we can change the way we think about brain health.
Thank you, Dana.
I look forward to learning more regarding your insight as well!
Jeffrey
You are right on with this post. Timing is everything for young brains. Having the right intervention with the need for the young mind can be miraculous..
Jim,
Thank you for your insight and for engaging the blog. As a life-long educator, you and others like you are closest to this and, I believe, a critical to identifying what these “early timing” interventions look like in the environment in which you and the children exist. Thank you.
Jeff
I’m in full agreement with the four points in the outline, and wish to add a two-fold proposition with which I’m confident you will agree: (1) There needs to be parental responsibility, both for recognizing and dealing with the particular issues of ” brain health” and (2) Early recognition and intervention by the parent is crucial because recognition by the school or government agencies might be late for decisive action. I affirm that there is a role for private agencies, but even they can be “too late”.
With the permission of my daughter, Valerie: Her delightful and energetic son, my grandson, Joel Micah, was diagnosed with a form of autism at an early age because she recognized significant difficulties which resulted in a formal diagnosis of “Sensory Process Disorder,” making it difficult to chew–mixing solid food in a blender! Imagine my daughter’s excitement when she called, “Dad, Micah had his first bite of a cheese burger!” And there was an even more serious problem than eating–Micah might not be able to learn to speak, but Micah began speaking at the age of three!
My daughter, Valerie, is a very tenacious person, even stubborn for a good cause, and Micah is very good cause!. She was determined that her son would learn to speak, and he did because she worked with him closely, argued with teachers and school administrators, and engaged tutors, often graduate student from a nearby university. Joel Micah is now ten years old in the fifth grade and is doing well, not only in cross country and guitar, playing before a live audience only a few days ago, but in “regular school work,” overcoming earlier learning difficulties and even invited to joined the STEM Program. He actually enjoys reading, proudly informed various persons, “My Grandpa is a librarian!”
We need to find ways to orient parents to the recognition of problems of “brain health”, encourage them to patterns of intervention, confirming that “the experts” can be wrong. I talk with Joel Micah a few time a week, and now am taking to email, in which he is ahead of me!
Joel,
Thank you for sharing your extensive and personal insights, and for engaging the blog. Your story (and that of your daughter and grandson) is exactly the kind of thing that I believe can happen–with early intervention. And your addition of parents is, of course, spot on.
Thank you.
Jeff
I support the use of “brain health” vs “mental health” and agree with the article and the statements above. Another component of “brain health” before recognition and intervention is prevention. And the term brain health is more conducive and makes more sense to include nutrition as a huge part of prevention. The nutrition practices in this country are not good to say the least. We really need to take a good hard look at what can we do to prevent brain disease or a “Broken Brain” that is not all that costly – get rid of the sugar and move the body. These two items are closely related to depression & anxiety, in children as well as adults.
Connie,
Thank you so for taking the time to offer your thoughtful insights, and for reading the blog in the first place. Your insight regarding proper nutrition–early and ongoing–is thoughtful, as is your comments on exercise, particularly as they are connected to depression and anxiety. Very helpful!!
Thank you.
Jeff
Thank you for this post. It speaks to us all and it is priceless to be acknowledged .
Peggy,
Thank you very much for your comment and for reading the blog!
Jeffrey
Thank you for this post and for advocating on this topic and hosting on the UD campus in mid-November a meeting on brain health (much prefer this terminology). I agree that we need a brain health revolution, but need to start pragmatically and your four talking points identified make perfect sense to me. I could write a book, and someday hope to, concerning people whom I have loved with brain health issues, such as schizophrenia, ADD/ADHD, depression, dementia, alcoholism, addictions, and suicide. Like a lot of people, I have attended many funerals of loved ones who lost their battle with brain health issues. From my past experience, I have been frustrated by the inadequacy of mental health care, the closing of facilities, proper diagnoses, and the shortage of trained and competent physicians, counselors, psychiatrists, psychologists; collectively, which have contributed in too many lost and/or broken lives. In this 21st century, studies reveal that more people live with brain issues than with heart disease, lung disease and cancer combined and, in my opinion, this health diagnosis continues to need more attention and resources. I feel it is important to dispel the long-term stigma associated with a brain health diagnosis, accumulate more resources, provide early and proper diagnosis/intervention and proper treatment, and add in doses of faith, hope, love, understanding and acceptance, and then maybe more people afflicted can find light and hope in their darkened world and find joy in a productive lifestyle. President Bullock, thank you for your time and attention to this extremely important topic that knows no boundaries.
Carla,
Thank you for sharing your very insightful and personal thoughts. I/we sincerely appreciate you insight and passion.
Jeffrey