I asked if I could turn my head (I have no idea why I asked if that was OK, I just did) and I was told, If you can tolerate it. If you look it up on the Internet it is supposed to be hooked up to an external temperature air conditioning unit. So, they gave me another shot of something for pain. and 6mm papillary carcinoma w/ adjacent 2-3mm papillary carcinoma another section 6mm papillary carcinoma and right parathyroid lymph node with thyroid carcinoma 8mm. 5) Biopsy report came back showing 2cm+ Papillary - w/ follicular variant, and Lymphocascular invasion, but completely contained in Thyroid. I know my body and disagree. Simply put, for me, the only option was the traditional open neck procedure; but, I felt better knowing I'd exhausted that possibility. I was told that I couldn't do radioactive iodine (rai) for six months due to my ct scan (cat scans use iodine for imaging and RAI would not be as effective). Health care providers perform thyroidectomy to treat thyroid disorders. However, after getting through that process, I was back to being pretty much completely normal. The pain got less and less little by slow. For the first 14 days I showered from the armpits down and washed my face and hair in the sink to keep the stitches and steri-strip dry. I had a Total Thyroidectomy around 9 weeks ago for FVPTC, then they ran me hypothyroid for 6 weeks and pushed TSH over 100, then did my RAI 3 weeks ago. Also on the 4th I have a physical therapy appointment with one of the technicians and he did another wonderfully painfully session but the next 2 days there was basically no knee pain. A complete neurologic examination confirmed otherwise normal cranial nerves. Be careful. He also said that the CT scans looks real good and would tell me more in December time frame. I know this is long but if you are new to this, maybe hearing my story will be helpful. If they kept me overnight, the plan had always been for him to go home for the night. . Muscle cramps. I also felt extremely nauseous (although I did not vomit). I have been constantly monitoring my weight and diet, and have been able to keep it in check till now. 1. By 6:30 or so I was famished. FOIA Know that this cancer is treatable and you will be ok but do not belittle your diagnosis - it sucks- don't neglect your fears they will eat you up. 2nd of August was my last visit with Dr E., he thinks am in a stable mental state and we both agree that more appointments right now probably wouldnt help any. Some may be from my Saliva glands, but THyroid bed feels sore for sure. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. Get the latest news and education delivered to your inbox, Receive an email when new articles are posted on, Please provide your email address to receive an email when new articles are posted on. Has anyone else had this problem? 2010. I didn't overly strain, but I did have one day where the pain meds must have overwhelmed the stool softener and I pushed a little harder than I think I should have. When comparing neck pain and disability scale (NPDS) scores, neck sensitivity and pain with neck movement before thyroidectomy, after 1 week and after 1-month time-points, it was found that patients experienced significantly less pain and disability in the stretching exercise group than the control group (p < .001). Bookshelf I went home around noon the next day and the hour long drive home wasn't that bad. Sihawong R, Janwantanakul P, Sitthipornvorakul E, Pensri P. J Manipulative Physiol Ther. Seriously, I'd managed to get half a sip of water down in what was the most painful swallow I'd ever experienced and I now had to take half a dozen HIV antiretroviral and other pills. That was attributed the nodules and the cancer. Neck stretching exercises done immediately after a total thyroidectomy reduce short-term neck pain and disability symptoms. Although, I highly recommend going somewhere where you can be alone (not a hotel). The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. Hi! Background: Below are general instructions for patients who have had thyroid or parathyroid surgery. My personal torturer is U. and he is defiantly good at his job of making me hurt for an hour + so I feel better later. Was in Hospital 5 days post op with JP drain and limited help, had numerous asthma attacks due to not being able to eat and acid reflux. She also gave me hints to help minimize the surgical scar. I then used the towel to dry off and threw the blanket over me to keep from exposing myself to the world. Ear surgery went well on the 19th I started getting my hiccups and those lasted 7 days I did manage to get an ear infection on Friday Aug 20 and by Sunday evening I was at max allowed pain meds and it wasnt helping. My first endocrinologist was awful to deal with so I switched to seeing my current endocrinologist, who is ok but a hour and a half drive and she recently reduced her clinic hours to just on friday which doesnt work with my work schedule. 2. On Thursday night my mom made a very basic Thanksgiving dinner and I was able to eat all of it with no problems whatsoever. Your neck is likely to be swollen and may feel hard and numb right after the surgery. The Impact of Post-Thyroidectomy Neck Stretching Exercises on Neck Mine is Synthroid and it really is noticeably better. My Experience with thyroid cancer - so far: Papillary and follicular thyroid cancer (differentiated), Multiple endocrine neoplasia type 2 (MEN2), Mental challenges of living with thyroid cancer, ThyCa fundraising and thyroid cancer research grants. This was an amazing surgery within seconds of becoming conscious I noticed how loud everything was. Could be in the supermarket or at KFC, I have no idea. They both gave me their reasons why. I have been on Levothyroxine 125 to 150 for 2.5 weeks and am starting to feel better from Hypothyroid symptoms. Chronic postoperative pain exists in varying degrees for every type of surgery. mcg of synthyroid. I later saw a special on TV (I don't remember if it was Dateline NBC or Front Line PBS) about hospitals getting more aggressive in seeking payments up front. I'm excited to BE that friend but as of right now I'm still in the middle- waiting for test results and piles of bills. I was also very coherent and cognitively feeling much better. Our patient has a persistent Horners syndrome 4 years after her thyroidectomy. I really needed people telling me what was going on. I am 27 years old and was diagnosed with papillary thyroid carcinoma in December last year. I resumed my mental health appointments with Dr E. on the 24th of May. Soooo I got in to see a new guy in my Drs practice and he referred me to an ENT the next week. She was confident that these findings appeared after her thyroid surgery. Learned its horizontal vertigo or thats what Co. (my torturerphysical theraphist) said. . Minor differences in their approach. You should wait at least 6 months after surgery to see how much would neck skin retract. My time in the ICU was unpleasant, but only because I wasn't able to get any sleep the night before my surgery and the night I was there. I also am a side sleeper and had trouble getting any rest whatsoever. Increased swelling, redness, or drainage from the incision. The only problem I had with the surgery was hiccups that lasted about 10 days, I was told this was due to the tube they put down your throat during anesthesia. You should not lift any heavy objects for about 2 weeks after your operation to avoid any strain on your neck. For starters I only discovered what an endocrinologist or Thyroid even was like 8 weeks ago. If you have to, ask your doctor about using milk of magnesium (get some and keep it on hand). After getting zero sleep last Sunday night I arrived at the hospital at 6:00 a.m. sharp on November 23. My surgeon wouldn't commit to either putting in or not putting in a JP drain prior to surgery, but he did say he doesn't use them as often as other surgeons. I was immediately put on levothyroxin and sent home. My Endo says I still "have" cancer (I wanted to clarify) not sure when that Dx will go away but I've read 5 years (is this true?). I also would like to provide a write-up of my experiences with the surgery, as others that did so were extremely helpful for me. Evid Rep Technol Assess (Full Rep). Damaging the nerve is possible on infrequent occasions. I really haven't had pain since mid-lsat week. 3 Sep had an appointment with my primary care doctor for setting up appointment for my right knee and more ear drops for the infection. Federal government websites often end in .gov or .mil. The first four days or so were the worst. 30 Nov 2011 Official Retirement from Navy. 2019 Dec;98(51):e18309. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. Twenty-eight patients who had undergone thyroidectomy and 28 healthy . On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. I was downing water like crazy as well, which helped but also was a double edged sword of making me need to use the restroom quite frequently, which was a chore with all the monitor wires attached. I'm normally an extremely social individual that loves living life to the fullest and experiencing the best that it has to offer. I quickly ordered mac and cheese and mashed potatoes. An evaluation of the incidence, the typology and predictive factors of chronic pain was carried out at 3 and 6 months after thyroidectomy.A prospective observational study, having included each of the patients prior to their thyroidectomy, was carried out over 12 months. I had my friend, that is a PT, feel my neck and she said yes you have something in there and you need to go see your dr asap. The first few sips of water are described below, but then the pain quickly got better over the next week. Family has been very patient with my mood swings, thank God! I didn't sleep even a minute. Yeah! PMC Disclaimer. The people taking care of you know what they are doing and will make sure that you come out on the other side of the surgery just fine. I had compression stockings on that kept me up, noise like crazy in the ICU, nurses and doctors coming in, 2 IV (one in each arm), and a blood pressure monitor going off every hour. The Nutritionist who gives this seminar said she would check through my medical record to make sure my levels were normal and if she couldnt find all the blood tests she would order them so I could get my nutrition balanced. But, on leaving the hospital I was told to come to the doctor's office in a week for my replacement prescription. A randomized controlled trial was conducted. Appreciate any help on this. But, after some bit of haggling I agreed to a small payment up front (really small - like less than a trip to Costco small) and to pay the balance after my insurance got done with the bill. The scar is 5cm long and as of now looks good. Complications associated are still common and 80% of patients complain of posterior neck pain. I did not receive a call, so, I showed up at the appointed time and was taken back to pre-op at almost exactly 2pm. I am in the normal range and will worry about that in December time frame. He also set me up with some Blood tests and put in the recommendation for a full Sleep Apnea study in Silverdale. #1. This hospital uses fentanyl and midazolam post-op. I had to use the urinal, but it is just easier to use it in the bathroom than in the bed for me. At about 6:45pm the anesthesiologist came in, asked a few questions and said he was hoping for my surgery to start at around 7pm. 29th of July. I know some of my mom's friends who have had it done that were out running a few days later. I just started going back to work this week. My surgeon kept telling me it's normal after the surgery, but won't give me detail explanation. Then I read where the glands do not show up on CT. It was another small blow knowing that I had 2 types of thyroid cancer not one. Then, I was given a warm blanket to put over that. Then, they hit me with propofol and the lights went out. It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. Cheers. That's a nice way of saying they put it in a neck wrinkle. Removing all or most of the thyroid (thyroidectomy). J Minim Access Surg. PLEASE REMEMBER this is just my experience. I had a lot of other questions, but those two were, at the very least, on the top of my list. My wife took my kids up to her parents in Wisconsin and my mom stayed with me in Chicago. Vascular dilation on the other side of the face may or may not be present (Figure 1). 8) Waiting on TG and TGant tests Monday, but surgeon wants to biopsy the 1.5 cm lymphnode and open me up this week and remove if cancerous. When I told my endo 3 weeks ago that I feel cruddy, I had a blood panel done and everything is in the normal range. Answer: Skin laxity after thyroid surgery. I am currently taking 275! I will admit it defiantly made me dizzy but I was able to safely drive to work afterwards. Some people experience short-term side effects after thyroidectomy, including the following: Neck pain: You may experience pain on swallowing or breathing for several days following surgery. On the 16th of September I star my physical therapy, I have defiantly noticed that during and for the next few hours after physical therapy my knees hurt a lot more as expected for the next 4 or so days the pain is greatly reduced and I can walk better. Jon. I also feel much more anxious and depressed. I don't exactly have problem swallowing, but when I do, it feels as if some one is lightly-moderately pressing my neck. The combination with of nortriptyline 10 mg per day and . I'm sleeping over 14 hours+ a day, I'm shaky, chills off and on, but no fever. I met with two different surgeons. Days to Celebrate The bottom line is that as soon I said I'd had a positive FNA and that the nodule was greater than 1cm I was told no. After hours emergency: A/Professor Miller's mobile - emergency only please. I apologize in advance for the extreme detail in this that may bore some of you, but since I had no idea what I was facing, different people's detailed accounts really helped me prepare for minor things I may not have thought of. Has anyone struggled with breathing issues post TT? At the end of the first week, the NPDS scores (mean [SD] = 8.82 [12.23] vs. 30.28 [12.09]), neck sensitivity scores (median [IR] = 0 [.75] vs. 2.00 [4.0]) and pain levels with neck movements (median [IR] = 0 [2.0] vs. 3.5 [5.75]) of the stretching exercise group were significantly lower than those of the control group.
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